I'm in Toronto Canada. Our provincial government hates special needs people (Doug Ford). Kids are almost ignored here. We get the help we can, and every 3 months or so come out of pocket (aprox $1500)for very intense private physio therapy sessions with a world renowned children's therapist. We also have the CEO of Sickkids Toronto as our daughters main specialists. He's actually the doctor who kind of discovered her genetic disorder maybe 10-15 years ago. GRIN 1. But to get here it took pulling teeth. Family doctor was negligent AF until I wrote her a very sternly worded letter ketting her know I was very disappointed she wasn't taking our concerns seriously. She was missing so many milestones. After that letter, her whole tone changed. Since then the process has been slow, especially genetic testing her, myself, and moms, but it's progressing. Now we have so many people invested into helping her. But there is still so much more that can be done here. If you're a family without help, or low finances, you're totally vulnerable and in a horrible spot.